Open access peer-reviewed Edited Volume

Patient-Reported Outcomes - Key Indicators of Responsiveness and Quality of Health Care

Niyi Awofeso

Hamdan Bin Mohammed Smart University

Dr. Niyi Awofeso holds postgraduate qualifications in infectious disease medicine, public health, business administration, and health administration. He has so far published more than 120 peer-reviewed articles in well-regarded academic journals, authored five books, and eight book chapters.


Patients' Surveys Health Status Patient Experience Patient Satisfaction Patient Journey Communication Safety Timeliness Healthcare-Patient Partnership Communicating with Consumers Quality of Life Clinical Outcomes

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About the book

The patient-reported outcomes refer to reports of the status of a patient’s health condition that comes directly from the patient. The patient-reported outcome tools measure the experience of patients' journeys, how they feel about the process and outcomes of treatment by asking questions. These tools enable assessment of patient-reported health status for physical, mental, and social well–being. While well established as a clinical research approach, they are less commonly used in health care practice, especially in the care of patients with chronic conditions. Also, not enough is currently known about aggregating these patient-level self-reports for measuring the performance of the healthcare entity delivering care. There are two main groups of patient-reported outcome measures. A Patient Reported Experience Measure (PREM) is a measure of a patient's perception of their personal experience of the healthcare they have received. PREM instruments should focus on the aspects of the care that matter to the patient. Patient Experience Outcome Measures (PROM) are self-report questionnaires, completed by patients, and seek to measure their perceptions of their health status and health-related quality of life. The information gained from these responses can be used to provide a more patient-centered service, improve the quality of care, and optimize the responsiveness of health services to legitimate expectations of health consumers.

Especially with regards to subjective ailments such as severe pain or certain types of mental illness, patient reports of quality of care are increasingly used as prime measures of the effectiveness of care. Commonly required performance data in healthcare tend to focus principally on inputs (e.g. workforce and medicines) and outputs (e.g. life expectancy), but they are silent on a range of other things valued by patients, including pain, function, communication, quality of life as well as the experience of care itself.

Health care system responsiveness may be described as the ability of the health care infrastructure to meet the population's legitimate expectations regarding their interaction with the health system, apart from expectations for improvements in health. It is a major goal of health systems. Poor responsiveness may negatively affect the utilization of services and the effectiveness of interventions. Information on responsiveness plays a critical advocacy role for echoing the voice of health consumers. Two major facets of healthcare responsiveness are respecting for persons/health consumers (e.g. that the health system should treat patients with dignity, facilitate shared decision making, provide for clear communication with their health care providers and assure confidentiality of their medical encounters, and client orientation (e.g. that health care systems provide prompt attention, access to social support, choice of provider and aesthetically pleasant care environments.

This book project will cover these and related issues about patient-reported outcomes and their measures and provides a solid platform for sharing and learning about initiatives to measure health care outcomes that matter to patients, such as quality of life. We invite health care researchers, patients, health policymakers, and clinicians as well as other health care providers.

Publishing process

Book initiated and editor appointed

Date completed: November 19th 2020

Applications to edit the book are assessed and a suitable editor is selected, at which point the process begins.

Chapter proposals submitted and reviewed

Deadline for chapter proposals: December 17th 2020

Potential authors submit chapter proposals ready for review by the academic editor and our publishing review team.

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Approved chapters written in full and submitted

Deadline for full chapters: February 15th 2021

Once approved by the academic editor and publishing review team, chapters are written and submitted according to pre-agreed parameters

Full chapters peer reviewed

Review results due: May 6th 2021

Full chapter manuscripts are screened for plagiarism and undergo a Main Editor Peer Review. Results are sent to authors within 30 days of submission, with suggestions for rounds of revisions.

Book compiled, published and promoted

Expected publication date: July 5th 2021

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About the editor

Niyi Awofeso

Hamdan Bin Mohammed Smart University

Niyi Awofeso is currently a professor at the School of Health and Environmental Studies Hamdan Bin Mohammed Smart University (HBMSU), Dubai. He commenced his public health career as an infectious disease physician and acting medical director at Nigeria’s National Tuberculosis and Leprosy Training Centre in 1990. Prior to joining HBMSU in 2013 from the University of Western Australia where he worked as Professor of Health Management, he accumulated extensive research and professional experience at both middle and senior management levels in academia and the international health industry. He holds postgraduate qualifications in infectious diseases medicine, public health, business administration and health administration. He has so far published more than 120 peer-reviewed articles in well-regarded academic journals, authored five books and eight book chapters.

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As an Author Service Manager my responsibilities include monitoring and facilitating all publishing activities for authors and editors. From chapter submission and review, to approval and revision, copyediting and design, until final publication, I work closely with authors and editors to ensure a simple and easy publishing process. I maintain constant and effective communication with authors, editors and reviewers, which allows for a level of personal support that enables contributors to fully commit and concentrate on the chapters they are writing, editing, or reviewing. I assist authors in the preparation of their full chapter submissions and track important deadlines and ensure they are met. I help to coordinate internal processes such as linguistic review, and monitor the technical aspects of the process. As an ASM I am also involved in the acquisition of editors. Whether that be identifying an exceptional author and proposing an editorship collaboration, or contacting researchers who would like the opportunity to work with IntechOpen, I establish and help manage author and editor acquisition and contact.

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