@incollection{Thorogood20,
author = {Adrian Thorogood},
title = {International Data Sharing and Rare Disease: The Importance of Ethics and Patient Involvement},
booktitle = {Rare Diseases},
publisher = {IntechOpen},
address = {Rijeka},
year = {2020},
editor = {Zhan He Wu},
chapter = {15},
doi = {10.5772/intechopen.91237},
url = {https://doi.org/10.5772/intechopen.91237}
}